Friday, January 24, 2014

Jim Update

Finally after 2 weeks in the hospital Jim was released yesterday.  However, homebound we're not.  Mobility in his right knee keeps him from coming home. So our new home this week is the Barnes Jewish extended care facility in Clayton for rehab on his knee. More intensive therapy hopefully will get him moving and capable of walking unassisted again. It's been since November 23 that he was capable of doing that.  Too long. Contacted transplant team to let them know and transplant will most likely be pushed back another week.  That's ok, by then he should be up and walking and in much better shape for surgery.

Jason continues running tests but so far no more seizures have occurred. Thanks to family and his friends, the not driving thing hasn't been much of an issue. 

Again thanks everyone for your prayers and support.

Wednesday, January 15, 2014

Svoboda Family Update

Today the doctor drained Jim's knee. He had immediate relief. He was able to bend his knee and get up and walk with assistance. His pneumonia is better. Finally on the right track. Tomorrow he can once again start the physical therapy so badly needed to start walking unassisted again.

For now the transplant has been pushed back 1 week. He has to be completely off antibiotics before they can proceed with his preparation. So for now we are shooting for February 20th. Keep thinking good thoughts.

On Jason....today we say Dr. Joshua Dowling at Barnes. He basically said the same thing that Dr. Jaffri at Memorial has said. He has a low grade tumor on the right front lobe of his brain. Dr. Dowling wants to do another MRI on February 3rd to see if there is any change and to get a better idea for surgery. He currently is on anti-seizure meds.

For 6 months he cannot drive, take baths, ride bikes or do anything that may put him in danger. He is feeling fine, worried about Jim but is strong. Keep him in your prayers as well.

My thoughts.....God never gives us more than we can handle. However, I'm just about at my limits. Thanks everyone for your prayers and support. As a family we will get through this....


Friday, January 10, 2014

So Far 2014 Sucks......

33 more days until scheduled transplant.
33 more days to get Jim up and walking
33 more days to get Jim's pneumonia cleared up.
33 more days to get Jim's cysts to stop bursting.
33 more days to get his blood sugar under control.

Seems a lot to do but we WILL get it done. Jim is currently hospitalized with pneumonia in his upper left quadrant. Getting breathing treatments and antibiotics. Tummy pain from bursting cysts. Physical therapy to get him up steady on his feet and walking without a walker.

His first appointment for transplant preparation is next Friday. Doing a stress test, EKG and chest x-ray. Hoping we're still on schedule to get this done.

Only time will tell.

To top off 2014, Jason is also in the hospital after having 2 seizures at home and 1 in the ER. Scheduled for a spinal tap tomorrow.

Oh....and yes we had 13" of snow. Hoping 2014 improves quickly.



Thursday, January 2, 2014

February 13th here we come...

We just received confirmation that transplant has been set for Thursday, February 13th!!!

39 days and counting.

Will keep you posted as developments occur.

All we know now is that Jim has to be on anti-rejection medication for 4 weeks prior to surgery.

Thanks to all for love, prayers and support.